Wednesday, February 16, 2011

Good Day, Not So Good News

Today was a really fun day.  We took Tabitha for her x-ray first thing (clean again...no changes for the enema).  Then we went to the Children's Museum.  (Kelly B....remember going there when the boys were toddlers?!)  The kids loved it!  It was really a lot of fun!  So much so that we came back again after our afternoon appointment at the hospital!  Now we're back at the hotel, just had dinner, and then the boys will go swimming while poor Tab has to do her enema.  The boys and I are going to try to sneak out so she doesn't feel left out.  (Oops....she just saw Ethan in his swimsuit....guess that's not going to work.)

So, the day was great.  The not so great part was the news the urologist had for us.  After reviewing all her tests, it shows that she has Grade 1 kidney disease.  Grade 4 is the worst, so at least hers is the least serious.  He said it should be fine, as long as we're really careful about her cathing and all.  She has kidney reflux, which we knew, but we didn't know she had kidney damage.  In order to prevent further damage she needs to have surgery to fix the problems.

Unfortunately they can't do all the surgeries at once.  So first thing will be the colorectal/gynecological repairs.  That will be done as soon as they can schedule us, which they're thinking won't be until after this summer.  Then 8-12 months later will probably be when Dr. Alam does the urological repairs.  He said she will never be able to urinate normally.  We weren't expecting that she could, but that's kind of disheartening to hear him say no chance.  Today's news wasn't what we wanted to hear, but at least there is a plan, and we know she's in good hands and getting the best care in the world.

Tomorrow we don't have any appointments except the daily x-ray, and Friday we have our final meeting with the doctors.  Then we head for home, hopefully with a surgery date scheduled.  So, it appears we'll be seeing plenty more of the grand city of Cincinnati.

Which isn't entirely bad.  It's only 7 hours from home, an hour from our beloved alma mater, and the very city where we got engaged!  A couple nights ago Heath and I drove out to the park where he proposed 11 years ago.  It hasn't changed a bit!

So, not all good news but at least it was an enjoyable day.  :)

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